S has another dr. appt next week, I will discuss it again, at the time I brought it up, dr. suggested waiting.
Wait for what? Wait for him to develop full-blown symptoms? Most celiac patients endure years of vague symptoms before being diagnosed. You're the customer, tell the doctor you want your son tested.
I'm sure issues with this dr. included getting the immediate issues dealt with/stabilized, getting the pump started, subjecting him to the fewest procedures needed; probably $$ are an issue also, as our lousy insurance just within the last month paid it's portion of the fees for last summer hospitalization. Dr also stated that "it's rare/uncommon"; I will pursue it further though. I did look up the symptoms though, and I swear the one who has the symptoms listed by the association is is H. Getting him to the Dr is nothing short of impossible. sigh. I guess it never ends.
Here's a hoot, though: last nite when got home, realized I hadnt paid elec bill, not good....anyway, I was doing a phone payment & H walked into room....asked who I was talking to. I couldnt resist...raised my eyebrows, said "ummmm, you caught me, my boyfriend". Now get this...he actually got a teeny bit miffed, said "well that's what it looks like", then said "you also have a message on the answering machine from some guy in CA"...I told him "well there you go"...he actually left the room...ha. I havent checked the message yet, but I'm sure it's in response to a ? I left re S's insulin pump. Did tell H later what was going on, but still felt like revenge is sweet. I know, bad....
Damn,just lost a post... been going to post, been so busy havent. work is wild, I am stressed out and slow...budget cuts expected 7/1, hope I dont' join the ranks of the unemployed. Some days I think H & I are fine, somedays I am scared to death. he doesnt seem as "mushy" as he was for a while, which I miss; sometimes he is cranky and gritchy, which scares the crap out of me. He insists nothing at all is going on w/monster (seems like I heard that one somewhere before though) and I have to admit there is no evidence that there is. He does complain about how busy he is at work, and I find myself holding my breath waiting for "doing Paperwork" on the weekends to start again, and so far it hasnt, he is busy, I still do check his schedule occassinally. for the last 3 months he has shown me the phone bill statements. no calls. but still... now, here's a weird thing....about a month ago, he actually emailed me a pic that monster had sent him. evidently it was a christmas present several years ago. ahem. yes, it is that kind of pic. she is sprawled on a bed in a see-through teddy. I have had a mixed reaction to it. on the one hand it really grossed me out...on the other, I find myself thinking she really doesnt have anything I dont have in that dept.. Puzzles me as to his thinking in sending it. He said he wanted to prove to me that it really was over, so he was sending me ammo that I could use to forever keep monster humble. yeah, I guess it's that ok. A time or two I have mentioned my anxieties, and H has gotten irritated that he just wants to forget (???) and that he can't if/when I keep bringing it back up. So, I keep on plugging...right now I am just plain pooped and stressed. S is doing ok, diabetes is actually pretty well controlled at the time, esp. for a 14 y.o. D is about 5 weeks from due date, SIL is an anxious mess, guess he just needs a few weeks of diaper changing and getting up all hours to get over that. D has done well until this weekend, when she had one leg swell up, and has some minute amt of protein in urine...but hopefully all will be well. My brother is another story, and I'm really struggling. havent talked to him for a few days, he's been too ill to talk. He's been hospitalized for a week for the last kind of chemo they can give him. It's nasty, a combo called ICE...I'm sure you're familiar with it, Ellie.... concern is over kidney failure...and of course it not working. they have taken nearly 7 liters of fluid off his lungs in the last week. Specialist in Omaha told his local oncologist to be preparing hm mentally for a bone marrow transplant. Of course the issue then is finding a donor if he is unable to use his own stem cells. dont' recall if I posted, his cancer was upgraded to stage 4. sucks big time. I do have a question that I've been pondering for a week or so... let's see if I can word this to make sense. ummmm, ok. If a mother has an rh negative factor on her blood type, and the father has rh positive, is it possible some of their children would have rh negative factor? I always understood, from personal experience, that the postive factor is always dominate, as I'm positive, H is negative, but Dr's always told me I didnt have to worry about rh incompatibility because the postive is always dominate so the babys factor will match mine, thus no problem. ...you can probably guess where this is arising from! (no, not from daughter).... And then, to ice the cake, H's youngest sister seems to have hit MLC BIG time at 37, with a 14 mo, 10 yo, and 12 yo. Through her husband out of the house, dumped the male kids with inlaws, and has started "running" with jr-hi aged dr's friends. Lost huge amounts of wt, spending so much on clothes, shoes, fingernails and hair that there is concern of bankruptcy, calling in sick at work and disappearing, using lots of lies that fall through...all sounds familiar. everyone believes she is having an A....I'd guess so, H has said for some time she was. her H is lost...dumbstruck, as we all are. MIL is absolutely freaked out, wants us to take the kids....talk to her...all that stuff. hard to say no...but we can't. I would sink us in a heart beat. bleh. I need a vacation.... and I need to balance the check book, pay bills, clean house, fix supper......no wonder I feel tired. I did order my bike I've been gonna get for 2 years though, is should be in at the bike shop...didnt want to do a walmart specila at my age...although i'll have to put it on layaway.
oh yeah, in journaling mode now I guess....last week H & I were talking about a session he had w/a M couple; he commented that he had mentioned to one of them that they would need to live by the "trust code" to mend things...I couldnt think what that would be so asked. H said "say what you mean, mean what you say, and do what you say"...
oh wow, just read this quote from Michelle TW's post on Slowly's thread: "Love seems the swiftest, but it is the slowest of all growths. No man or woman really knows what perfect love is until they have been married a quarter of a century." -- Mark Twain
sheesh. this Saturday is our anniversary. t-w-e-n-t-y e-i-g-h-t. doesnt seem possible. I certainly know now that it all starts anew every day though. take that monster.
