I'm sure issues with this dr. included getting the immediate issues dealt with/stabilized, getting the pump started, subjecting him to the fewest procedures needed; probably $$ are an issue also, as our lousy insurance just within the last month paid it's portion of the fees for last summer hospitalization. Dr also stated that "it's rare/uncommon"; I will pursue it further though. I did look up the symptoms though, and I swear the one who has the symptoms listed by the association is is H. Getting him to the Dr is nothing short of impossible. sigh. I guess it never ends.