Hi Ellie, thank you so much for the post. I have been checked for the celiac, not a biopsy, but the bloodwork. And also had the Addison's test. Have not had the thyroid yet, but feel that might be coming.
I dont' want to share too much, dont' know what is normal amount to share here. But since it anonymous, its alright. When I carried my third son, I went undiagnosed as a diabetic and went into a coma. He was born prematurely as I was in and out of conciousness, at 27 weeks. I had pancreatitis and heart problems. He was in Icu for 73 days, but survived and other than being small for his age, and behind in alot of things, he is doing very well.
During the time leading up to the coma, I was basically incapcitated and had very high blood sugar (we know now), and had damage to my legs, arms, chest and one ventricle. I also contracted histoplasmosis and Epstein barr at this time. I have alot of muscle damage and after 4 yrs, my neurologist is just now getting the Epstein B. under some sort of control. I do have a chronic potassium deficiency that is a pain to deal with.
Mostly, I am able to walk and get about by myself. Sometimes I do need a bit of help. There is more, but that is enough for now. LOL
I do have good BS control, and dont' have alot of lows. Some lows that I am having, I am not getting any signals for. So its a little nerve wracking. I can go to 50 or 60 and not know it. I do have a service dog in training. She was not with me that day.
This made me really question whether I should even be attempting to work again. My neurologist is against the idea. But I feel like so much more of a whole person when I can contribute a little.
Things are pretty good with us, I just was hoping to work on some sort of lack of communication we seem to have. Or something like that. thanks for your post
