Quote: Took DD4 to dance class this morning and we met a little 2 year old lad who has CP (same disability as me), through being premature (same reason as me). I've never met anyone else who had it, even if he is only 2, so I spent the morning playing with him, LOL.
Jo - I can't believe it. You honestly never met anyone else with CP???? Gosh, it's not like it's that rare. Your mother never made an effort to introduce you to functioning adults with CP when you were a kid? You never belonged to any kind of advocacy group for people with CP??? Never went to a convention?
Other people with CP have had to deal with many of the problems you just outlined in your last few posts. Don't reinvent the wheel - find out how THEY solved their problems. You need to get connected to that community.
I have a niece with spinal muscular atrophy, the patient organization for that in the uS has been a fabulous source of support and information. Ellie
