Liese, Have you ever checked out ED bulletin boards? I wonder if other women going thru what you are would be a comfort to you? I always feel bad because I cannot offer anything comforting to say b/c I simply do not know what it's like to be in your shoes. I also can't imagine the despair your husband is going through. I am thinking it would be similar to losing a limb and/or the ability to walk. Might even be worse, because ED attacks his core being, who he is fundamentally--a man.
And for you, the sense of abandonment must be overwhelming.
Check out those boards--there might be something there for you both.