And btw Don, just because a doctor can't diagnose something doesn't mean it doesn't exist. I have another patient with a deteriorating condition over several years. I figured out parts of the puzzle - a peculiar unexplained dysautonomia, a mild case of Ehlers-Danlos syndrome hypermobility type with POTS syndrome - but it took her finally seeing several specialists to get an esoteric antibody test from Germany which confirms that she has an autoimmune small fiber neuropathy causing most of her symptoms. She now is being treated by a university team of specialists with IV immunoglobulin infusions and the cancer drug Rituximab. Only her intelligence and persistence led to the final diagnosis, which I bet not one out of 50 patients could have gotten that far through the system to access.
