I am so sorry to come here and read what has happened to you. I am keeping you in my thoughts and prayers and keep fighting to regain your health. Get second opinions if you aren't satisfied w/what the doctors have told you.

As for your h, when in MLC, very seldom do they wake up when their spouses are having a health crisis. Some may return for a short period of time out of guilt, but they eventually escape back into the MLC and it is often far worse than before. Unfortunately, their empathy chip is broken and you won't get much in the way of empathy from him. Just like teenagers, they don't get it when people are ill, especially seriously ill. When it comes to him, keep your expectations very low, if not to zero.

I would continue down my own path. Most importantly, keep the focus on you and your health for now. Your health is the most important thing at the moment.

Will you have someone there to assist you and your children? If not, this is something you will need to think about in the days ahead.

Again, I am very sorry that your health has taken such a turn. Please, please take care of yourself.

Sit quietly, the answers will reveal themselves when you least expect them to.
The past is gone, the present is a gift and you need to focus on today, allow the future to reveal itself when it is ready.