Thank you so much for your replies and support. It means a lot to me.


Originally Posted By: Kyh


I hope I you don't mind me asking but have you tried dietary therapy? My s had a miraculous turnaround when we eliminated gluten and dairy. After a few days off gluten he spoke to me, it was amazing. We were able to reintegrate dairy and soy after some time but he still has issues with gluten.



I'be been thinking about this, but S10 is a really fussy eater and it would be extremely difficult to completely cut gluten off his diet. I will try to reduce it as much as possible for D2 though, thank you for the suggestion.

Originally Posted By: ciluzen


I am sorry that you are without a support group where you are (friends, family, etc). I get that...times 10 when you have young children with special needs. Can you maybe find or even create a mom's or parents' group for those with kids on the spectrum through a local events or meetup site? Maybe even enlist the aid of a health agency in spreading the word? It might be a way of both making new friends and gaining some support for yourself. Worth a try!



I'm not sure if I'm ready for a support group or something similar but I have been making some progress into making friends locally and I have started getting loser to people at work and also my next door neighbor.

Originally Posted By: ciluzen


You aren't alone in this. You do have support here and people who look for your name and care about you. I know its not the same as in real life, but that will come. You just have to find the energy to make that happen. It will. It will get better!




Ciluzen, thank you so much for all this ^^^

I know what you mean, I think the support we get here is amazing, and I do feel like I'm among friends.

Originally Posted By: Huddy


My S was picked up at the 30 month stage, so, it's good to get an early diagnosis.



Huddy I think that I was not prepared for anything to be picked up so early as D2 seems to be thriving and is a very happy two year old. I am very happy I raised my concerns with the Health Visitor though, I thought I was paranoid but clearly I was right to mention those little niggles. Looking back if we lived in the UK when S10 was meant to have his 30 month check maybe he would also have an early diagnosis and we could have avoided the heartache that followed. Then again I would not have been able to "accept" an early diagnosis, it took me ages to see that S10 needed help, I thought that he was just quirky.

Roist - thank you for your kind words

HaWho - you are right! He does "crop edit and retouch" anything that doesn't fit his plan. When I mentioned that our situation will have an impact he was genuinelly surprised, like he didn't know what I was talking about! Insane!

Today I have a meeting about a VERY exciting project. My manager put me through for a training course which will lead to gaining a qualification to teach people about not wasting food and the benefits of local produce. It is a pilot scheme for a national project, so it might have a huge impact. H will pick up D2 from nursery and will look after her for a few hours, that will be lovely for her.


"There's nothing sadder than a conman conning himself"

“There is freedom waiting for you,
On the breezes of the sky,
And you ask "What if I fall?"
Oh but my darling,
What if you fly?”

-Erin Hanson