D20 hasn't been completely gluten free - she just doesn't have a lot of it in her diet. She tends to eat lots of fruits and veggies, lean proteins and occasionally the gluten stuff - we had shortcake on Sunday and she definitely had a serving. But when we go to get a burger (which we did Saturday night at Five Guys), she orders hers in a lettuce wrap. I happen to love them too.

Occasionally, she'll have toast with her breakfast, so she's not been entirely avoiding gluten. And she definitely won't return to a full gluten diet to get a biopsy. Volleyball season starts very soon, and she feels lousy when eating it. So when that happens, she *will* avoid it at all cost.

I'll definitely keep those questions in mind (thyroid, parasites) when we get in to her appointment.

That's really crappy about your genetic predisposition to celiac disease. I think we're all genetic time bombs in one way or another. My D17 is the first person in the family with the full blown Angelmans.. although my dad's cousin on his dad's side has 2 kids with some severe disabilities that sure sound awfully similar to my kiddo. Only she won't get the kids tested. WTF? It doesn't alter the course of treatment, and her kids are now in their 30s so I really don't get it. I haven't been tested for the breast cancer gene, though. My aunt has it (tested after she got cancer), and I am an awful lot like her in many ways so... that makes me a hypocrite, huh?

My toast to you is that it never goes further than testing positive for both genes.


"There are only 2 ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle."

Albert Einstein