D17 was literally born with ulcers - she had GERD from the get go. She had a nissin at 9 months to help with that. On top of that, she takes zonisamide for her seizures (acidic byproduct) as well as potassium citrate for her renal acidosis (also acidic). She was on prevacid and prilosec until the GI pulled her off and put her on ranitidine for years. We now give the potassium with food and the nexium an hour before dinner. Our follow up from the pH probe is Thursday.
I will definitely make sure she gets extra B12 - so thank you for that.
The reason we did the endoscopy in the first place is because we wanted to make sure that if the nissin had to be redone (it tends to loosen over time), we could do it while she's still a pediatric patient and use the same pediatric surgeon who did it in the first place. She turns 18 in March and we start some of the doctor migration then (GI and surgeons first). Nissin is intact. All that's left is to find out if she still has reflux (which is treated with nexium anyway but also might require some tightening of that nissin).
I actually want my D20 to be tested for celiac disease and gluten intolerance first. She has had constipation since her mid teens and it got really bad when she was about 17. She takes paleo greens and is more than pretty good with her diet to avoid foods that cause her distress (gluten being one of them). But still she has abdominal pain, some cramping and gas. She's really tired of feeling crappy. I honestly don't know what the problem is, so I'd like to get some sort of medical advice on the next step while she's home. There isn't a GI near her university... or even close.
Feel free to lead me here. They're supposed to call her today to set up an appointment, and she's asked for me to come with her.
Bets
"There are only 2 ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle."
