she is still not taking anything orally so we will be supplementing her diet by feeding through her g-tube, 2 ozs every 2-3 hours
she has lost over 2 pounds and has no energy
her seizures are increasing because of her inability to hold food in...
we have to take her off the pain medication she was on because she is having adverse reactions to it (like scratching all the skin off her side)
her face will scar but hopefully not too badly and will not require plastic surgery (again...hopefully)
I have to go back to work tomorrow because I have already missed 4 days (unpaid) and can't afford to miss more
Luckily, this is Cori's week off and he has some sick time he can use for Friday....
we have an appointment with her surgeon again on the 19th (Cori will be taking her) and we will discuss if we need to put her on continuous pump feedings through her g-tube
she has spoken a little bit today (yay)
but we are worried about her oral aversion becoming worse...
