Aww, thanks. But this is a road I've traveled all her life so it seems normal to me. Her epilepsy seems insignificant compared to the developmental disability - as far as being on my payroll and eternal worry list goes. But it's all good. Really. I wouldn't change her even if I had a magic wand. I know it sounds crazy, but I really enjoy her world.
That is really cool your dad was in the research side. That's fascinating and I'm so glad there are people out there who do that kind of thing. It's so worthwhile. Please thank him for me.
Her neuro just called and we put together a plan. We're weaning her down and will make the final call in a couple of weeks. She's also calling the epilepsy specialist at the hospital to have HIM put a call into the manufacturer to find out the deal. I told her to call me a jaded business person, but it will probably go back to money. At the very least, our next step is to see if she can even get more active and herself by going down to 5 mg a day. There's always hope.
Okay, time to head out for the day.
Thanks for all your input today--
Betsey
"There are only 2 ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle."
