Thanks, Barb! I've written them down. And if I ever get that desperate, D19 is 20 minutes from the Canadian border. I wouldn't hesitate to get her to do this for us either.
The thing is that Mr. W. and I really didn't like the side effects of Onfi (clobazam). She's seriously tired all the time and just not her normal congenial, upbeat self. One of the symptoms is suicidal thoughts... and though she can't act on them, she uses her talk chat program on her iPad to tell people that she's sad. I'm listening. And so a drug shortage here isn't the worst thing that happened.
Plus you know the dumbest thing? I probably shouldn't get started... Clobazam has been manufactured in Canada as Frisium for a really long time. But the US just started manufacturing it in 2012, and the FDA has granted them the rights to be formulary (no generics available) until 2016. WTF? Why, since this mfgr isn't the patent holder? How f*ing hard is it to manufacture a formula that's been in existence for more than 40 years? Is it any harder than aspirin or antihistamines?
Anyhoo, she does really well on the Zonegran (generic is zonisdamide). Her kidney doctor doesn't like it because of how it taxes the kidneys. But I'm just going to have to have the neuro talk to her and tell her to stick it up her butt. Right now, D16 isn't motivated to eat or drink much of anything. I'd rather be able to get her to do more and be her normal self. I miss *that* girl.
So all in all, I'm going to have to push the family agenda here.
And Barb, I'm so sorry to read about Ryan. That's so awful and I just can't imagine how you felt. That had to be a scary time, and one you won't ever forget. Big hugs to you for having to deal with that crap.
"There are only 2 ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle."
