Mer--One day, I will be teaching Parenting without Guilt 101 for anyone who is interested. And I believe that I am qualified to teach that one. So the next time your little guy feels ill and you don't know about it, don't let any medical professional try to make you feel bad...
I'm going to think about reasons why Mr. W. fears emotions. Right now, I can't come up with any logical reason...
He walked in the door this morning and was nice but a little distant. I tried to call him last night, but he turned his phone off (this was at 9 pm, so I'm not sure what that was about). I left him a VM to let him know that D6 was a little whiny but otherwise OK...
I don't know if this goes back to childhood, but I suspect so. His brother is even worse than he is, though he is not at all P/A. He just states NO when he means it.
Anyway, I'll think about it some more.
About private insurance... well, private insurance is offered by FOR PROFIT corporations. Medicaid is federally mandated but state supported--which is why there is such a difference in coverage from state to state. And they fund the poor and the disabled.
These wonderful FOR PROFIT organizations know that Medicaid is the insurance for the disabled. So any time after the age of 5, if they discover a congenital genetic defect which will not likely be changed for the better, they may elect to drop coverage on the insured.
We've been warned to expect this. It is legal and unfortunate.
And Medicaid is hardly the answer. There are precious few providers out there, and with the reimbursements lower than what you can earn at McDonalds, what is the incentive for providers to accept it? When you DO find a provider, there is usually a very long waiting list to get an appointment.
Plus Medicaid laws state that the individual who is receiving coverage may not own assets of $2K or greater. If they do, those assets must be liquidated before Medicaid can be accessed. This required us establishing a special needs trust to take care of that problem.
And establishing that SNT was what forced Mr. W. to deal with some feelings about issues that were just plain not going to disappear. Two weeks later, the DUI, and then his big walkaway scene.
We've had to contact every family member who had kindly mentioned D6 in their wills (knowing that her condition would not change for the better) and ask them to either drop her from it, or rename as the SNT. She can't afford to lose Medicaid.
The review we had yesterday was for a waiver program, which qualifies her to access a special pot of money for people with her issues. We have to requalify every year, and the conditions are written so they punish those who make progress to make room for others who need the services too. In Colorado, there are only 50 available slots for this group. And the governor will not allow people to share the slots.
So here we are. I will probably find out in April or so if she qualifies for the program again. If not, I'll figure something out.
Have fun researching this, Mer. I hope that things are different in your state, but I sincerely doubt it.
See you over at your place,
Bets
"There are only 2 ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle."
