Thank you so much, Walking. I cannot tell you how much I appreciate your thoughts. Today has been very rough.
I live in an area where there is not much for people with developmental disabilities, unfortunately. I am involved with a group that is trying to get some programs established. I am trying to get her involved with some acitivites, like Special Olympics, but she is resisting. I hear many parents talk about how difficult it is.
I have always cared for D, to my own detriment and the detriment of my business. Getting help would be a 180. I know that I can hire a babysitter, but I am tring to conserve money right now. I also don't think that I should have to. Somedays I feel like a single parent, which makes me not fear D. I would only fear the first few times that I had to be apart from her.
There may be some respite available, but from what I understand it is some type of reimbursement. The city I live in has never had anything for kids. I checked after she got her diagnosis. There will be more stuff available after she turns 18.
I am aware of a place that will take her overnight until she is 17. I have to pay for it, but I am genuinely considering doing it and getting out of town for a night, even if it is by myself. I hate to think of her as an anchor, but sometimes that's what it is and it is so unfair.
M44 H57 D17 (special needs) M 18 yrs Bomb 7/2/12 Still living together