Do you think H is in any denial as to S's true condition? That he will "grow out of it" despite contrary medical advice/opinions? You talked about possible fear by H. Is he afraid to lose S, and that clouds his judgment? And that the doctors are not telling the truth?
The first time I took D to a neurologist, H told me I wasting time, money, stressing her out, etc. because she did not have seizures. Well, guess what? After the EEG results, H really didn't have a whole lot to say. We went to a genetic dr. together for the 1st appt. I went alone on the 2nd one, and the guy said, oh you do know how to talk. After the diagnoses, H pretty much stopped going to appointments.
How hard is it for H to admit that his S is not perfect? I think it is easier for us as mothers to accept these problems, and to listen to advice. While we are struggling with control issues with H, for some reason, it is easier (in most cases) to let the professionals be in control. I've often wanted to ask H what medical school he went to. And I'm banned from using certain vets because he knows more than them. One of the vets is a pure control issue which I saw with my own eyes.
Is the lack of consistency in dosing control? Denial? If you think S can be responsible for taking his meds on his own, it may be worth trying. Monitor it to start out with. I've found 2 pills on the floor over the past week from when I have not been home to put the pills in D's hands (on those nights I put them in a med dispenser that H doles out). I asked her about it and she swears she is taking all of the meds. Once he gets the hang of it and is being responsible, it will be ok. But you will still need H's support, especially if you are getting the reaction from S following on H's cues.
As an aside, I had to start to use the dispenser because she wouldn't get the meds otherwise. When I didn't use it, D told me she wasn't getting her meds when I was out at night. I asked H and he told me that I needed to put them out because he didn't know what she was supposed to get. I asked him if he had read the labels. I'm sure you can imagine where that conversation went.
M44 H57 D17 (special needs) M 18 yrs Bomb 7/2/12 Still living together