Well, after more than 2 months in hospital - Ryan is coming home tomorrow. I am VERY happy about this. They first approached me about discharge more than 3 weeks ago. We needed a safe plan for his return home - no way we wanted to deal with more problems with skin breakdowns. So we have opted for the special mattress that will basically turn him throughout the night. The government program will rent it for the first month (trial period) then I will buy it - it will be nearly $10,000 with tax. YIKES!!!
Discharge planning was very stressful for me. One minute I was supermom, the next they were suggesting I see a shrink. One minute they agreed there was no better place than home for him, the next they were suggesting placing him in a nursing home. It was so up and down. It was emotional and draining. I spent a bit less time at the hospital (partially due to that, partially due to a bad cold). And Ryan has been grumpy. He seems upset with me for not being there as much and for him being in hospital. So it's been challenging at best.
But I think I've worked through most of the issues. I know that the agency will still drive me crazy but I think I can get past that. I know in my head what the big picture is and I know what is best for Ryan. And home is that place. And I am very excited.
His hospital room was one mass of cards. He received over 100 cards for his birthday - it was SO touching. Some from all over North America. Some people even had their kids make cards for him. It did my heart good too.
His dad has texted me once a week asking if he's been released yet. Not how he is doing or how I"m doing - just if he is at home. I just answered the question.
So - wish us good luck and ongoing good health for Ryan.
