OK, we're getting through this. Not feeling like we're in a crisis. Taking care of things one step at a time.
1. Ryan's skin has healed dramatically. He was happy when I was at hospital and his PSW stayed with him for a few hours too
2. Supervisor of extended care replied to our plea (letter form) to streamline Ryan only into the rehab centre in the hospital in our town. (BONUS). This means it will be close enough for me to visit and for our PSWs to continue to visit him and even to take him out - now we have to wait and see when he can get in. Drs have to keep him in hospital as we are waiting for a bed
3. Conference call with "the bully" - Josh and I on one end, she and one of her henchmen on her end. She was not into negotiating. We did not make much progress. She did agree to pay the workers to work on Ryan's walking for 15 min per day at no extra charge to me. She would not concede on rate increase, travel cost etc. It would not have been beneficial to Ryan for us to continue to battle. She did put a price freeze on for 3 years.
4. Chuck sent me a text out of the blue asking to see Ryan on Father's Day. Ahem... So I texted back that he was in hospital. There were a few texts back and forth. He just asked to be kept informed of his progress. That's it.
Josh said to me - "Boy - you really do seem to get it from all sides".
Anyway - we went out for dinner then for a long ride in the boat. We stayed out till dark. We can never do that. I always have a curfew - have to be in the house by 8. We're going to stay out when we can - LOL - it will rarely happen.
We will get the mattress before he comes home. Sad to say he might be in hospital all summer - even for his birthday. But if he comes out stronger and more able and it will improve the quality of his life - this time will be well spent - a drop in the bucket of his lifetime.
