Summer and Fig: Taking notes and I really appreciate your input and support.
TOday is going a little better. As you say - something has to give.
The hospital dr wants him out and phoned to ream me a bit. I held my ground and told him I also want him home but not if he's just going to deteriorate and go back in next month. Government supervisor (N) offered to run some interference with agency supervisor (C) - they often have to deal with one another although there's no love lost there. N is ALWAYS my best advocate. We agreed she should not talk about the bill but about the need to sit down with Josh and I to discuss the billing and not add more pressure to me. Apparently it went well.
Ryan is improving rapidly. Always does on antibiotics. He was happy today and had the biggest smiles for me. He was also pleased to see his workers.
So we have a Plan B, although I'm afraid to get too excited because we know Plan A went south fast. (& apparently once rejected - can't go there again). Anyway - there is an 18 bed recovery unit in hospital with a day program, outdoor area, large sunny lounge etc. It is a therapy centre and on top of having time for his skin issues to improve - he could have daily therapy there. This is something that would be a GIFT to him. (Meaning in that he would get therapy). Costwise - app $2,200 month. He would be there between 14 and 90 days. There is a bed available in a 3 bed room (not suitable) but a private room is coming available soon.
Ryan walked up until he was in Intensive Care 18 months ago. He has been getting stronger and was walking in the pool (although there will be no pool for a while). There he would have the extra "learning to walk" equipment and DAILY physic. As well - there's an awesome whirlpool tub that he would love (used to have one in his room in Niagara). That might help him too. The thought of "hospital" extended care did not sit well with me but this is actually a decent option.
And N is arranging for a free one month trial on a special mattress. No point in shelling out the $ if it's not perfect for him. I think that's a great idea.
So some progress is being made. Maybe a CRISIS is necessary to make the changes necessary.
I left Ryan with his "harem" today. 2 of his workers showed up because they missed him. And he had a really nice nurse. And he was one happy guy.
And Josh arrives tonight. And it's always easier when Josh is here.
