It so nice to get the input from a nurse like you (and Gineen). It makes me know that I'm not alone in knowing that she is bullying me and financially abusing me. I could write a book about the behaviour of this woman. Last month - just as Ryan was going into hospital - she accidentally Butt Dialled me. I was able to hear her BADMOUTHING me to my son's workers - telling them that I should be paying them more. Just what I needed to hear. Now I know why the workers like her - she gives them just what they want! I don't need them siding with her against me. I also heard her badmouthing my government appointed care coordinator (who is lovely and very supportive). I called her out on this the next day (she appeared at my house when I was still in my pjs) - she denied it - said I heard wrong. I had even heard her speaking to my workers by name!!!
Every person who has attended at my home - re his care, his respite, his therapists, his dietician, his supplies vendor, his pharmacist - have said how pushy and demanding she is. She takes over my role at times but drives everyone nuts.
Although this is the last thing I want to do - I am going to start building some kind of a backup system. Some extra respite. Because I have a feeling things could blow up. I don't plan to talk to her at all about the new "billing" to start June 15. I already told her what I thought of it. Even if I have to accept it for now - I want a new plan forming. Maybe a nanny if I can't get reliable care elsewhere. And although I had stopped doing most of his "on hands" care - I may have to go back to that for a while.
Worse case scenario in my head - if they pull out suddenly - put him in respite for 30 days (the max) while I get a new agency in place.
I think it's time to call in the troops. I will call an agency I spoke to last month and also the agency who subcontracts Ryan's care to her. And the care coordinator again and also the national group she belongs to. I think I need to expose her for what I feel is financial abuse.
I can't take it anymore.
And yes - I wish you could be here to give us a break and help us transition through this. Besides - you'd love it. it is so beautiful and we're right on the lake. I need to get this back to the dream home it was intended to be.
I like that you are also 56. (I am 2 months younger than you - LOL). I'm sure we could be friends.
