Found out that my ex does not leave for Russia for another 2 weeks. Ashley told him Ryan is in hospital but I have not heard from him.
Local supervisor from government agency who provides us with some hours for Ryan's care (most is paid by me) had a nice talk and supports me 100%. She has heard the other supervisor give me a hard time repeatedly and she is offering me some other ideas. It helps...
I am off to the hospital soon. (have a couple of workers here this morning for a bit longer and can't leave). I spoke to the hospital nurse supervisor today (she asked to speak to me when I called in). Ryan is awake, alert and seems happy. (relief!). He had several skin lesions when he went into hospital but almost all have cleared! (ok -that's a miracle - thank you for your prayers). She also made a point of telling me that Ryan's overall condition is absolutely amazing considering his age and his disabilities. Obviously a result of his care. This is a different nurse than the one who spoke to me the other night. Once again - it reminds me that I am doing well for him and should continue on the same course.
Josh is coming up tonight. I feel better when he is here. We are going to go to dinner and a movie tomorrow. We never get to go. It just means such a struggle to get a babysitter that it's often not worth it.
I'm going to look into getting a nanny more seriously. I have a plan forming. I would still need some nursing help but not as much as I have now. It would be more cost efficient and allow us to go out in the evenings more often. It might be a long time coming - I heard that the wait is app 5 to 6 months. But that could make life easier.
Can't wait to see him and hope that he is awake today.
