I just checked in today...I am SO truly sorry for what Ryan is going through. It just breaks my heart that he is dealing with this. And please know he is in my prayers as you are too.
I am glad that you and Chuck are dealing with this as the loving parents that Ryan deserves. Sometimes people DO rise to the occasion when we least expect it.
When my younger son was dying...my now xH did not rise to the occasion and thus, he carries that guilt everyday and will till the day he dies. That is a heavy burden. I am proud of how well you're handling this. My best advice is to continue to always take the high road.