Thanks to each of you for prayers and support. Chuck has called me every day when he leaves the hospital to give me his update. I don't tell him that I had just talked to the staff - I think it is better to give him his just dues and communicate.
Yesterday was SO difficult. I watched him seizure every 5 min for the first hour. It was so very hard on me. Finally they increased his sedation and it stopped (but it was just masked, really).
I will have to cancel his trip to Disney. We were to leave in 10 days. Haven't had the heart to do it yet although I was told to on the first day.
Today I will not be alone at the hospital. Josh is coming, then my sister, best friend and one of Ryan's longtime workers from when he was little. Chuck will probably also be there. I've been alone most of the past couple of days. I think this support will be better.
Josh came down and made dinner last night and tried to get my mind off of things. I'm struggling...
