We had high hopes for him, with the drug trial, that's all.
When school started, a year ago, he knew the alphabet and could count to 20.
Degenerative mitochondrial disease - - to qualify you have to have three systems degenerating. Joey is neurological, muscular/skeletal, and cardio.
Now he has braces on his legs, can't speak, but when you look in his eyes, which I do, at least twice a week; you see that he is so scared and trapped.
