Sandi's in Piecing and it's getting better

[sandi2]

Thanks hon, I tried to do some catching up on some neglected threads tonight. I have had some rough nights and last weekend from Thursday night through Sunday night was really tough. My doctor went to New York City Monday for a big council meeting from the specialist from all over the country regarding a new drug that has not come out for physicans to give yet and don't know when or if it will. He did not say they were making any claims about "healing" Firbromyalgia, but hoped it would help relieve some of the symptoms. Of course, I would prefer the healing, but I'd gladly and very gratefully accept helping. So, please say a little .......no, a big prayer for all Firbro patients' sake that they will find something soon. I meet more and more people that have this all the time. They all have the same reaction as I did when I was dianosed. They just can't believe it could cause that much pain and other things disorders that go along with it. It is amazing how so many are affected by this mysterious disease. It is equally distrubing to know how many are misdianosed as having Lupus or something else when it is this mess. Anyway, can't help but get my hopes sky high that something will be out soon. The first and only drug at the time that was ever even advertized for Firbro was Lyrica and when they finally begin making a few TV comercials about it, it started getting people's attention. That helps when that happens, you know? But, Lyrica didn't do much for me. However, anytime people are made more aware of physical disorders or handicapps or diseases.....the better. Then, the medical people come out with Cymbalta for the depression and pain, and my stomach couldn't handle that.......so, we will see what happens next....lol. I just wished they could find something for the chronic fatigue, b/c that bothers me as much, if not worse more often than the pain.....which I think I've told you that before. Repeating one's self is another sign......lol...no, just kidding. But, you know how we talk about people in MLC having "fog"? Well there is--for real, what is called Fibromyalgia "fog"! You feel just like your brain is in a thick fog and you can't think fast enough or it just goes blank---period. It is very embarrassing. But, I think I'm just losing my memory, more than having fog.....lol.

Well, it was about 2:30 a.m. when I got to bed this morning and got up at 6:00 a.m. to go to work......don't you know this has been a looooong day? Now, here it is a few minutes until midnight and I am still up. Have I mentioned that is another sypmtom? No sleep?

Thanks for checking on me and letting me vent. It helps.

Love ya,
Sandi