Hi Babygirl, I got your post on my thread. Thank you for telling me about your Lupus. I am ashamed that I missed that somewhere, but I did not realize you had it. When they first ran tests on me, I showed a positive for Lupus, but they thought it was a false positive. Anyway, he said it was so close to the border that is why he thought it was false.
One of the biggest problems that I have had at work is the fact that the woman that works right in front of me all day long.....has lupus. When I was diagnosed with Fibromyalgia, I had never heard of it and nobody in the office had either. I did not have enough information about it or understand it enough to explain to everyone what I had when I went back to work. Anyway, she has given me the most grief out of all the people at my job. She doesn't believe that Fibromyalgia is anything and that I am just a ........well, I don't know what she thinks I am, she just rolls her eyes if anyone says anything about me. I know about Lupus. I have read about it. My best friends sister died with it many,many years ago before anyone knew anything about it. So, I realize how serious it is. The doctor did tell me that Lupus and fibromyalgia are all in the same family.
The thing that I don't understand is this.....and I hope you can help me to understand b/c I really want to. I miss so much work due to the pain and the fact that I can't walk b/c of the nerve pain in my legs, etc. There are days that I don't have enough energy to get across the floor, get out of bed and get myself dressed. The fatigue is as bad as the pain. So, I miss a lot of work. This lady never misses! She never misses work, but she is suppose to have a disease that is much worse than mine. She has said enough to the boss as well as the people that I work with that they do not think I am serious when I miss b/c she doesn't miss and look at what she has! See what I am saying? I don't doubt that she has a lot of problems. I have never doubted the seriousness of her illness. But she goes everywhere all the time. She is never home. She travels every weekend and is very, very active in her church work that takes her all over the state practically. She holds more offices in different capasities than anyone I know.......how does she have the energy? I asked her one time and she said she did not give in to it....like I did. Well, that really made me feel good...don't you know. But, I think I am a person that endures a lot of pain b/c I went for 25 years that i had Endometriosis so bad that when I finally had the sugery, my doctor said it was the worse case he had ever seen. I have had chronic back pain since my first child was born 42 years ago and have been so bad that I worked an entire year bent over like a 90 year old woman. So, I have had my share of pain and I know what it is like. It offends me for this woman to treat me like I am a wuss and that I don't have a "real" disease. So, please tell me what to do. Why does she feel this way? Well, you wouldn't know that, I guess. But, can you tell me how she has so much energy and why she never misses a day of work for illness? It doesn't make sense to me if she is suppose to be so much worse than I am.
i hope I have not said anything offensive out of my frustration. I never take anyone else's pain like it was "nothing" b/c my family has seen its share. I just wished somebody could explain this to me.
I would appreciate anything you can offer.
Sandi
It is not about what you feel should work in your M. It is about doing the work that gets the right results. Do what works!
