The horrible thing about not being able to discuss this with a doctor is that I can't get expert confirmation, which is the only way I think H will listen to me. I don't believe I'm grasping at straws, even though I know all of us here have a tendency to do that--H has a vast majority of the physical, psychological, and sexual symptoms of dopamine depletion, including physical symptoms that can only be caused by dopamine depletion and can only be treated with dopaminergic treatments.
I didn't realize this until I found a medical article discussing physical symptoms of dopamine depletion and nearly all of them described H to a tee--random symptoms that neither of us or any doctor had ever seen were related to each other!!!!
Arghhhhh. How could I have been SO BLIND?
This theory ties together literally ALL of H's ongoing and more recently acute problems. It doesn't discount his family history or our history at all--it gives it all a baseline of explanation.
I HATE our insurance system.
I may just pony up the cash to see a neurologist outside my network. I can't afford it, but I don't know what else to do!
I don't know how to goal-set right now. I feel like punching a hole through the wall. (As if I were strong enough!)
It is in the shelter of each other that people live.--Irish proverb