, it is just that when people offer that kind of "suggestions", I feel that they do not take what I have seriously Maybe so Sandi. I have found most people to be very serious.
I think people do take you seriously but don’t know how Fibromyalgia (FM) effects you. FM is different with different people
Those things are for somebody with mild or occasional fatigue or insomnia OK, I agree with you on that point.
and it is the "manner" that it is said to me that hurts. Two things here. The manner the poster intends and what you hear can be different.
I know by the way it is said that they are "mocking" me. I certainly don’t intend to mock anyone. Mrs. Cac is sympathetic, Dom had some in-your-face advice.
Here is my general observations about most posters. I have been posting for several years and very rarely take someone else’s post as mocking. Yes, some replies you receive are rather direct but most people want to help, not mock you.
. Now, I don't want to be the one misunderstood in what I'm saying......ok? Perhaps it is more of a frustration than anything else. OK, that makes sense. I can read and feel the frustration.
I get the impression that some may think that I am just whinning and using excuses, so to answer you question I can only say that I want to be believed about the severity of my physical situation. That is what I need first and foremost is to be believed that the "degree" is more than just the usual "I'm tired" or "I don't feel good". It is important to me that my friends here on the board accept that and believe me.....and don't think I'm using it as an "excuse". OK your FM is severe. I don’t doubt that. I don’t know how I or most people can help with the FM. We can consider it when posting to you.
One thing you did say, you had an EA and a poor R with your H. That part some people here can help you cope with, maybe give you some of our experiences of what worked or didn’t work, how we see and apply items from books to improve relationships.
SSM is a relationship support forum. FM is an issue in your M, but we are not medical people so can’t help with that part of your life that much.
Her diabetes was so brittle that she could not keep it under control no matter what she did or didn't do. I have heard of cases like that. I am not any help in that area.
I'm "touchy" b/c I feel that my chronic fatigue and fibro does make a huge difference in my stitch. I confessed that while I was contacting the OM that I felt better.....but that is not to say the problem went away. I had bad days during that time. But, those chemical.....fake or otherwise....gave me motivation.....fake or otherwise. So, I know by that that emotions does effect my physical feelings. It does anybody's. I agree and I think that the unhappiness has caused my physical problems to be worse. All that is about what I think too.
How can you help? Believe in me. Talk to me like I have something serious that I deal with day in & day out and not like I should just think positive and drink a coke. Maybe nobody knows what to say. Maybe I'm needing more than what anyone can give.....I don't know. Like I said before, when it comes to FM, I don’t have any helpful advice. I say that is a medical issue and I am not qualified in that area.
Dom said that my physical problem wasn't the "real" problem and I knew it. But, I don't know what to do about it. The real problem???? Since when is Dom the expert on what the “real problem is?
The physical is part of the problem. The R is part of the problem? Your H is part of the problem. Maybe there is a hidden problem. It is OK to define the problem but some day you should look for solutions and apply some to your MR and see what works.
Wham the physical effects the mental and visa versa. That is right.
Listen guys, you know I love all of you. Thanks for the thoughts in that direction Sandi. I still want to see that love go towards your H but it is not my call. I think most of the people on the forum would like to see you have a better M/R and that is not a request, just a sentiment.
Maybe when you are feeling a little better, talk about something that you read or interests you that might pertain to improving your M or make you happier.
Please just be here for me and believe in me.....about this stuff. Then......any encouragement you can give me toward "working" on my M is appreciated. I hope some of this makes sense How about You bring up the topic and tell us where you want to go with that topic and how the topic relates to your M.
