Last year, on December 20th, a friend lost her son to complications from epilepsy...he had just turned two.
This year, on December 20th, a great friend of mine (actually of my whole family) lost their little girl from complications from epilepsy. She was 4. She was Finn's hospital roommate over Christmas one of the first long stays...
It has been very hard. I am so grateful for what I have been given and I have learned, through Finn, that each day is a gift.
A wonderful friend of mine from work gave me and Cori surprise Christmas presents. He beaded a lanyard for Cori, embedded with prayer and gave me a beautiful leather messenger bag (he said all English teachers should have one) He told me that Cori and I were inspirational to him...that when life was getting rough for him and he felt like sitting down, we reminded him to stand up.
This man lost his entire family about 7 years ago...to a drunk driver. His wife, 4 children and his brother. He was a police officer at the time and the first one on the scene. I believe I would have stopped living at that moment.
He never gave up and 4 years ago, he had a beautiful baby girl. She has some kidney problems and she is a constant state of UTI...there is nothing that seems to work for her.
He says mine and Cori's unending sense of gratefulness is something he admires (he is so amazing and I always strive to great the world like he does...having lost his whole family in one night, he hasn't turned bitter or resentful but has used that pain to fight for better things for everyone.)
in this season of peace...
I hope you all can find the gratitude for the blessings you have been given...to find the beauty in the small things...to remember those who are suffering...to help others find hope when they have misplaced it.
So sorry for the loss of these precious children. I know how easily it can happen. But miracles happen too. My seizure ridden 4 year old is now 34! He is doing great right now.
Wishing you and your family peace & a Merry Christmas!
Angels are placed in our paths to give us direction. Other times, they appear to remind us how blessed we truly are.
The difficult years for me lasted three years. My Ryan had surgery when he was just three. He is now 18 and rather than weekly blood checks and transfusions, we have annual visits and daily meds.
Merry Christmas and happy blessings.
kat
Me-53(and learning!) S24, S21, D18, D17 Just keep swimming, Just keep swimming. Dory
We've also lost a few kid friends to seizures. I've always felt blessed that D16 has maneuvered through them okay. But we've always been told that it is a reality. Once her seizures started taking on a different theme after the age of 12, her neuro told us that she's not going to be one of the lucky to outgrow them. So you just keep on keeping on.
Merry Christmas to all of you! Betsey
"There are only 2 ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle."
So you just keep on keeping on.